IRS Form 990-EZ Financial Filings & Official PDF Publications
Complete Tax Transparency & Official Community Publications
The Family & Friends Down Syndrome Association of Niagara, Inc. (DSA Niagara, Inc.) maintains 100% volunteer governance with zero officer salaries. Every dollar raised through the Buffalo Niagara Buddy Walk, the Down River Run 5K at Fort Niagara State Park, and community donations supports local families in Niagara County and Chapter’s Coffee Cafe at the Lewiston Public Library.
IRS BMF Legal Organization Name: FAMILY AND FRIENDS DOWN SYNDROME ASSOCIATION OF NIAGARA INC (THE FAMILY & FRIENDS DOWN SYNDROME ASSOCIATION OF NIAGARA INC)
Doing Business As: Family & Friends Down Syndrome Association of Niagara, Inc. / DSA Niagara, Inc.
Employer Identification Number (EIN): 80-0265472
Exempt Status & NTEE Classification: IRS 501(c)(3) Public Charity (Ruling Date: August 2009 · Foundation Code 15 / 170(b)(1)(A)(vi)) · IRS BMF NTEE G25 / G80 / P82 (Down Syndrome & Developmental Disabilities Support)
2024–2025 Official Mailing Address: P.O. Box 159, Lewiston, NY 14092-0159
2021–2023 Historic Filing Street Address: 250 S 7th Street, Lewiston, NY 14092
Tax Return Telephone: (716) 246-2144
Principal Officer (2024–2025 Form 990-EZ): Deborah Fleck (Debbie Fleck), President & Treasurer
IRS BMF In-Care-Of Contact & Vice President: Christine Sirianni (Christine Vescio-Sirianni), Co-Founder, VP & Co-Treasurer (christine.sirianni@dsaniagara.org / info@dsaniagara.org)
Corporate Secretary: Bobbie Trunzo-Meredith
Signing Treasurer / Books in Care Of / Honorary VP: Anne Kaphingst (Anne Farley-Kaphingst), Lewiston, NY 14092
Board Members: Rich Meredith III (Social Events Chair), Dr. Sindoor Desai, Wendy Graczyk, Mary Lou Trunzo
Independent Accounting Firm (Form 990-EZ Paid Preparer):
Brown & Company, LLP — Steven H. Brown, CPA (PTIN P00174208)
4992 Sweet Home Road, Niagara Falls, NY 14305 · Tel: (716) 298-8000 (Firm EIN: 16-0984836)
Multi-Year IRS Form 990-EZ Financial Summary (Tax Years 2020–2025)
| Tax Year | Form Type | Total Revenue | Total Expenses | Net Income / (Deficit) | End-of-Year Net Assets | Officer Compensation | Filing Address & Reference |
|---|---|---|---|---|---|---|---|
| 2025 | Form 990-EZ | $8,783 | $3,995 | +$4,788 | $21,698 | $0 (100% Volunteer) | P.O. Box 159, Lewiston, NY 14092-0159 · DLN/Object ID: 202601279349202575 |
| 2024 | Form 990-EZ | $5,645 | $5,962 | -$317 | $16,910 | $0 (100% Volunteer) | P.O. Box 159, Lewiston, NY 14092-0159 · Signed by Deborah Fleck |
| 2023 | Form 990-EZ | $7,459 | $5,331 | +$2,128 | $17,227 | $0 (100% Volunteer) | 250 S 7th Street, Lewiston, NY 14092 · Prepared by Steven H. Brown, CPA |
| 2022 | Form 990-EZ | $6,098 | $4,768 | +$1,330 | $15,099 | $0 (100% Volunteer) | 250 S 7th Street, Lewiston, NY 14092 · Books: Anne Farley-Kaphingst |
| 2021 | Form 990-EZ | $5 | $589 | -$584 | $13,769 | $0 (100% Volunteer) | 250 S 7th Street, Lewiston, NY 14092 · Pandemic Pause Year |
| 2020 | Form 990-EZ | $1,734 | $1,645 | +$89 | $14,353 | $0 (100% Volunteer) | P.O. Box 159, Lewiston, NY 14092 · Total Assets $14,353 / Liabilities $0 |
Verified Schedule O Functional Expense Breakdown (Form 990-EZ Detail)
In accordance with IRS Form 990-EZ Part I Line 16 and Schedule O supplemental disclosures prepared by Brown & Company, LLP (4992 Sweet Home Road, Niagara Falls, NY 14305), DSA Niagara allocates over 81% of its annual expenditures directly to Down syndrome community parades, awareness events, family programming, and public outreach:
| Schedule O Expense Category | Verified Amount (2023 Detail) | Share of Total ($5,331) | Programmatic Purpose & Operational Verification |
|---|---|---|---|
| Parades & Community Events | $3,152 | 59.13% | Lewiston Kiwanis Peach Festival Parade, Buffalo Niagara Buddy Walk, Down River Run 5K at Fort Niagara State Park, and seasonal family gatherings. |
| Website & Digital Outreach | $643 | 12.06% | Domain registration, digital hosting, and online community communications for Niagara County families. |
| Affiliate Dues & Subscriptions | $575 | 10.79% | National Down Syndrome Society (NDSS) official affiliate dues and Niagara River Region Chamber of Commerce (NRRCC) membership. |
| Liability & Event Insurance | $295 | 5.53% | General liability coverage for park races, public parades, and Chapter’s Coffee Cafe vocational training sessions. |
| U.S. Postal Service P.O. Box Rental | $194 | 3.64% | Annual rental of Official Mailing Box P.O. Box 159 at the Lewiston Post Office, Lewiston, NY 14092-0159. |
| Office & Printing Supplies | $132 | 2.48% | Printing of hospital welcome packets, Buddy Walk registration forms, and parent resource guides. |
| Professional Accounting Fees (Part I Line 13) | $125 | 2.34% | Annual Form 990-EZ preparation by Steven H. Brown, CPA at Brown & Company, LLP, Niagara Falls, NY. |
| Miscellaneous Program Supplies | $115 | 2.16% | Refreshments, awards, and hospitality supplies for youth social events and volunteer appreciation. |
| New York State Filing & Permits | $100 | 1.88% | Municipal event permits and New York State charities registration fees. |
Official Printable PDF Document Library
All seven official PDF brochures, hospital outreach guides, and Buddy Walk registration forms are available below for immediate downloading and printing:
1. 2009 Hospital & Family Brochure
File: files/Family___Friends_Brochure-hospital-2009_1_cvsfinal2.pdf
Official trifold brochure distributed to maternity wards, pediatricians, and new parents across Niagara County introducing DSA Niagara, the lending library, and parent-to-parent mentoring.
2. 2011–2012 Buddy Walk Brochure
File: files/BuddyWalkBrochure2011-12.pdf
Complete guide to the Annual Buffalo Niagara Buddy Walk held during the Lewiston Kiwanis Peach Festival, detailing the Red Brick School assembly point and Ridge Street parade route.
3. Buddy Walk Registration & Waiver
File: files/BuddyWalkBrochure2011-1.pdf
Printable mail-in walker registration form, lime-green t-shirt size chart, and participant liability waiver payable to DSA Niagara, Inc., P.O. Box 159, Lewiston, NY 14092.
4. Down River Run 5K Race Brochure
File: files/DownRiverRunbrochure.4WEBpub.pdf
Official race publication for the Annual Down River Run & 1-Mile Fun Walk at Fort Niagara State Park in Youngstown, NY, featuring age divisions, course rules, and post-race picnic details.
5. Down River Run Sponsor Tier Form
File: files/DRR_sponsor_form1.pdf
Corporate and community sponsorship commitment sheet ($100 Bronze, $250 Silver, $500 Gold, $1,000 Platinum) supporting the Miles of Care Fund and Chapter’s Coffee Cafe.
6. 68 Down Syndrome Links Digest (2008)
File: files/68LinksDigestJanuary12008.pdf
Comprehensive directory of 68 curated medical, educational, speech therapy, and Trisomy 21 research websites compiled for Western New York families and special educators.
7. WNY & National Resource List (2008)
File: files/DownSyndromeResourceslist2_1_-2008.pdf
Printable telephone and address directory covering Niagara County Early Intervention (716-278-1991), Lewiston Public Library (716-754-4720), NDSS (1-800-221-4602), and regional agencies.
Multi-Year Community Milestones & Program Highlights (2006–2024)
| Program Era | Primary Community Focus | Featured Program Pages | Key Niagara County Milestones |
|---|---|---|---|
| 2006–2019 Era | Hospital New-Parent Outreach, NIOGA Lending Library & Lewiston Peach Festival Buddy Walk | index.html, AboutUs.html, Advanceregistration.html, BuddyWalkStore.html, LewistonLibrary.html, Resources.html, UpcomingEvents.html, LLcontactus.html |
Dedication of the 2006 Lewiston Public Library Down syndrome collection, annual Academy Park Buddy Walk gatherings, and Sunshine Team youth bowling at Lewiston Frontier Lanes. |
| 2020–2024 Era | Down River Run 5K at Fort Niagara State Park, Miles of Care Travel Grants & Chapter’s Coffee Cafe | Unified program directory connecting family resources, race registration, and vocational inclusion | Expansion of the annual June Down River Run 5K & 1.5 Mile Walk and the December 3, 2024 grand opening of Chapter’s Coffee Cafe & Snack Bar inside the Lewiston Public Library. |
Proud Member Since 2023: Niagara River Region Chamber of Commerce (NRRCC) in Lewiston, NY.
United Way Partner: Chapter’s Cafe is partially funded by The United Way of Greater Niagara as a 2025 funded agency.