IRS BMF Legal Name: FAMILY AND FRIENDS DOWN SYNDROME ASSOCIATION OF NIAGARA INC · 501(c)(3) EIN 80-0265472 · NTEE G25 Mail: P.O. Box 159, Lewiston, NY 14092-0159 (c/o Christine Sirianni) · Tel: (716) 246-2144 · christine.sirianni@dsaniagara.org · info@dsaniagara.org
Verified IRS Form 990-EZ & Mailing Office Official Mailing Box: P.O. Box 159, Lewiston, NY 14092-0159
Historic Filing Street: 250 S 7th Street, Lewiston, NY 14092
Chapter’s Cafe Venue: 305 S 8th Street, Lewiston, NY 14092
Tel: (716) 246-2144 · Email: info@dsaniagara.org
IRS BMF Liaison / VP: Christine Sirianni (christine.sirianni@dsaniagara.org)
Officers: Deborah Fleck (Pres.) · Christine Sirianni (VP/Co-Treas.) · Anne Kaphingst (Treas.)
Verified Contact & Venues

Official Mailing Address (2024–2025 IRS Form 990-EZ):
DSA Niagara, Inc.
P.O. Box 159
Lewiston, NY 14092-0159

Historic Tax Return Street (2021–2023):
250 S 7th Street
Lewiston, NY 14092

Chapter’s Cafe & Lending Library:
Lewiston Public Library
305 South 8th Street, Lewiston, NY 14092

Official Telephone:
IRS 990-EZ Registered Line: (716) 246-2144

Official Email Links:
christine.sirianni@dsaniagara.org
info@dsaniagara.org

Donate, Sponsor & Volunteer with DSA Niagara (IRS 501(c)(3) EIN 80-0265472)

Miles of Care Pediatric Heart Surgery Travel Fund and Community Support
Every contribution directly supports Niagara County families, the Miles of Care cardiac travel fund, and Chapter’s Coffee Cafe at Lewiston Public Library.
ZERO OFFICER SALARIES · 100% COMMUNITY IMPACT

Support Local Children, Teens & Adults with Down Syndrome

Because The Family & Friends Down Syndrome Association of Niagara, Inc. is operated entirely by unpaid parent and community volunteers, your tax-deductible donation goes straight to local families in Niagara County. Contributions fund the Miles of Care pediatric heart surgery travel grants, Chapter’s Coffee Cafe vocational training at Lewiston Public Library, hospital welcome baskets, and the Lewiston Library Down Syndrome Collection.

Official Mail-In Check & Memorial Gift Instructions

Make Checks Payable To:
FAMILY AND FRIENDS DOWN SYNDROME ASSOCIATION OF NIAGARA INC (or The Family & Friends Down Syndrome Association of Niagara, Inc. / DSA Niagara, Inc.)

Official Mailing Address (Verified 2024–2025 IRS Form 990-EZ):
DSA Niagara, Inc.
P.O. Box 159
Lewiston, NY 14092-0159

Optional Memo Line Designations:

  • General Niagara Family Support Fund
  • Miles of Care Cardiac Travel Fund
  • Chapter’s Coffee Cafe & Snack Bar (305 S 8th St)
  • Lewiston Public Library Down Syndrome Collection
  • Buddy Walk / Down River Run 5K Sponsorship
IRS 501(c)(3) Tax-Deductibility & Corporate Matching

Federal Tax ID (EIN): 80-0265472

IRS Tax-Exempt Ruling: August 2009 (501(c)(3) Public Charity)

United Way Partner Agency: Chapter’s Coffee Cafe is partially funded by The United Way of Greater Niagara as a 2025 funded agency. Donors participating in workplace campaigns may designate gifts to DSA Niagara.

Treasurer & Receipt Inquiries:
Official Organization & IRS 990-EZ Telephone: (716) 246-2144
Officers: Christine Sirianni (IRS BMF Contact, VP & Co-Treasurer) · Deborah Fleck (President & Treasurer)
Email: christine.sirianni@dsaniagara.org · info@dsaniagara.org

Four Dedicated Ways Your Contribution Changes Lives in Niagara County

Miles of Care Pediatric Cardiac Travel Grants

1. Miles of Care Travel Fund

Nearly half of infants born with Down syndrome experience congenital heart defects. When a Niagara County child must travel out of town (such as to Rochester or Boston) for specialized pediatric cardiac surgery, Miles of Care provides direct grants for fuel, lodging, meals, and hospital parking.

Chapter's Coffee Cafe Vocational Training at Lewiston Public Library

2. Chapter’s Coffee Cafe (305 S 8th St)

Opened December 3, 2024 inside the Lewiston Public Library, Chapter’s Cafe empowers young adults and adults with Down syndrome to gain customer service, hospitality, and point-of-sale skills every Tuesday, Wednesday, Thursday, and Saturday from 10:00 AM to 12:00 PM.

Down River Run 5K and Buffalo Niagara Buddy Walk Sponsorship

3. Down River Run 5K & Buddy Walk

Event sponsorships underwrite race timing, park permits at Fort Niagara State Park, commemorative lime-green Buddy Walk t-shirts for individuals with Down syndrome, and family picnic hospitality during the Lewiston Kiwanis Peach Festival.

Lewiston Public Library Lending Collection and New Parent Packets

4. Hospital Packets & Library Books

Gifts purchase up-to-date developmental guides, speech milestones books, and teacher inclusion toolkits housed permanently at the Lewiston Public Library (305 South 8th Street, Tel: 716-754-4720) and delivered to new parents.

Annual Corporate & Community Sponsorship Tiers

Sponsorship Tier Contribution Level Recognition & Community Benefits Official Form
Platinum River Sponsor $1,000+ Headline logo placement on Down River Run 5K and Buddy Walk banners, race shirt back-print headline, recognition at Fort Niagara State Park award ceremony, and 6 complimentary event registrations. DRR_sponsor_form1.pdf
Gold Falls Sponsor $500 Prominent logo on event shirts and course mile markers, recognition at Chapter’s Coffee Cafe community board, and 4 complimentary event registrations. DRR_sponsor_form1.pdf
Silver Escarpment Sponsor $250 Company name/logo on official event t-shirts, website acknowledgment, and 2 complimentary event registrations. DRR_sponsor_form1.pdf
Bronze Village Friend $100 Listing on event sponsor board at Red Brick School / Fort Niagara State Park and official IRS 501(c)(3) tax receipt. DRR_sponsor_form1.pdf

Pledge a Contribution, Request a Tax Receipt, or Volunteer

Open Registration & Store Calculator
2025 Form 990-EZ Officers

EIN: 80-0265472 · 501(c)(3)
Officer Compensation: $0 (100% Volunteer)

  • Deborah Fleck (Debbie Fleck) — President & Treasurer
  • Christine Sirianni (Christine Vescio-Sirianni) — IRS BMF Principal Liaison (c/o), Co-Founder, VP & Co-Treasurer
  • Bobbie Trunzo-Meredith — Secretary
  • Anne Kaphingst (Anne Farley-Kaphingst) — Signing Treasurer, Honorary VP & Books in Care Of
  • Rich Meredith III — Social Events Chair
  • Dr. Sindoor Desai, Wendy Graczyk & Mary Lou Trunzo — Members At Large

View Full Governance & Bios »

Affiliates & Local Partners
Niagara River Region Chamber of Commerce Member Since 2023

Proud Member Since 2023: Niagara River Region Chamber of Commerce (NRRCC) in Lewiston, NY.

United Way of Greater Niagara 2025 Funded Agency

United Way Partner: Chapter’s Cafe is partially funded by The United Way of Greater Niagara as a 2025 funded agency.